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Oh my God, Laura. I wailed when I read this. Your mom knows you all did your best in the most horrific of circumstances. You fought so hard for her. I am so so sorry for your loss.

I agree with your point 3 above. Allopathic docs do not understand autoimmune diseases almost all of the time. They placate and medicate and try this and that. I do not agree with this: autoimmune disease is not curable. I am sure it is, once we figure it out, if too much damage has not already been done. My late spouse died of ALS and we felt helpless. We studied and tried a lot of things. But with so much misunderstood, the inevitable arrived. They say ALS is neurological but do not consider the autoimmune system.

Thank you for telling your story. Again I am so sorry. πŸ’”πŸ™πŸ’œ

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I am not your Other: I could not hear your wailing, only because I was too. Laura's story is heartbreaking.

I am so very sad and sorry for the loss of your beloved spouse to ALS.

I agree. There are many older medications that doctors refuse to utilize in the present circumstances.... as if, some kind of new disease needs new drugs. Many of the older medications on the market have proven to help maintain activity for the individual without the massive side effects and damage they do to the body as a whole. One specific drug is Prednisone. It is a simple drug that is not so wonderful but it works specifically on the inflammatory process so that a patient with disabling autoimmune can remain active and fit, with a better range of motion, eat better, actually sleep at night instead of up all night in agony or drugged into oblivion just to "sleep" and then wake in the morning starting at square one.

Either case. Both of you have suffered greatly and my heart aches for your suffering and loss.

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